Here with Help – Support for You so that You Can Take Care of Them

Patient & Caregiver Resources

Despite its benefits and rewards, caregiving for a loved one may also bring you financial, health, and emotional challenges. Often, informal caregivers do not have enough time for themselves as they balance work and family responsibilities with the demands of caring for a loved one experiencing the stages of end of life.

Respite care is a temporary hospice resource for families and caregivers designed to provide a much-needed temporary break from the exhausting challenges faced by the family caregiver, or for those caring for loved ones who might otherwise require permanent placement in a facility outside the home.

Support and Resources for Caregivers and Families

General

• Administration on Aging: National Family Caregiver Support Program
• Caregiver Action Network
• Family Caregiver Alliance, National Center on Caregiving: Caregiving Info and Advice 
• Family Caregiving 101 
• National Alliance for Caregiving
• National Family Caregivers Association 
• National Institute on Aging: Caregiver Guide
• Second Opinion: Caregivers
• Second Opinion: Caregiver's Diary and Resource Guide English and Spanish
• United Hospital Fund: Family Caregiving

Caring for a Loved One with Dementia

Caring for a loved one with dementia is often challenging. We have compiled a list of resources that may be helpful to you:

• Short videos on Alzheimer's Disease
• The WNY Chapter of the Alzheimer’s Association
• The Alzheimer’s Association 24/7 Helpline: 1-800-272-3900
• Adult Day Care
• Caregiver support groups
• Caregiver support resources
• The Conversation Project Kit for Family Members and Loved Ones with Alzheimer’s or other Forms of Dementia

In addition, please consult with your loved one’s primary care physician and neurologist for additional information and resource connections.