Here with Help – Support for You so that You Can Take Care of Them

Patient & Caregiver Resources

Despite its benefits and rewards, caregiving for a loved one may also bring you financial, health, and emotional challenges. Often, informal caregivers do not have enough time for themselves as they balance work and family responsibilities with the demands of caring for a loved one experiencing the stages of end of life.

Respite care is a temporary hospice resource for families and caregivers designed to provide a much-needed temporary break from the exhausting challenges faced by the family caregiver, or for those caring for loved ones who might otherwise require permanent placement in a facility outside the home.

Support and Resources for Hospice Caregivers and Families

General

• Administration on Aging: National Family Caregiver Support Program
• Caregiver Action Network
• Family Caregiver Alliance, National Center on Caregiving: Caregiving Info and Advice 
• Family Caregiving 101 
• National Alliance for Caregiving
• National Family Caregivers Association 
• National Institute on Aging: Caregiver Guide
• Second Opinion: Caregivers
• Second Opinion: Caregiver's Diary and Resource Guide English and Spanish
• United Hospital Fund: Family Caregiving

Disease-Specific

• AIDS Healthcare Foundation
• Amyotrophic Lateral Sclerosis (ALS)
• Alzheimer's Association
• American Association for Geriatric Psychiatry
• American Cancer Society
• American Diabetes Association
• Arthritis
• Arthritis Foundation
• American Heart Association
• American Stroke Association
• Cancer – Breast
• CANCERcare
• Diabetes
• Fibromyalgia Information Foundation
• Healthwise
• Heart Disease
• HIV
• National Eating Disorders Association
• National Fibromyalgia Partnership
• National Kidney Foundation
• Mental Health America: Formally known at the National Mental Health Association
• Multiple Sclerosis
• National Multiple Sclerosis Society
• National Parkinson Foundation
• Resources for ALS Caregivers
• Spondylitis Association of America
• The American Fibromyalgia Syndrome Association
• The Body. The Complete HIV / AIDS Resources

Caring for a Loved One with Dementia

Caring for a loved one with dementia is often challenging. We have compiled a list of resources that may be helpful to you:

Short videos on Alzheimer's Disease
The WNY Chapter of the Alzheimer’s Association
The Alzheimer’s Association 24/7 Helpline: 1-800-272-3900
Adult Day Care
Caregiver support groups
Caregiver support resources
The Conversation Project Kit for Family Members and Loved Ones with Alzheimer’s or other Forms of Dementia

In addition, please consult with your loved one’s primary care physician and neurologist for additional information and resource connections.

Other Resources for Patients with Serious Illness and Their Families

https://seriousillness.org/demo/

Here with More ~ WNY Hospices for Patients Outside of Erie County

Hospice Buffalo cares for patients who live in Erie County. Here is a list of the other WNY hospice programs.