Perinatal Program

We are here every step of the way for families whose unborn child has a life-limiting illness.

Here For You

The mission of our Perinatal Program is to provide support, education and guidance to expecting parents and families whose unborn child has a life-limiting illness.

We care for families at the time of diagnosis, through pregnancy and after birth. Our Perinatal Program is the only program of its kind in Erie County. We care for families with a wide variety of medical diagnoses including, but not limited to, trisomy 13, 15 and 18, cranial anomalies, congenital heart defect, Omphalocele, and chromosomal anomalies.

Our Perinatal Program services:

  • Admission evaluation in hospital, doctor’s office or at home
  • Development of a birthing plan that honors parents’ wishes, coordinating with physicians and labor/delivery staff
  • 24/7 on-call availability by pediatric registered nurses
  • Guidance and emotional support for siblings and other children in the family
  • Connections to resources that help families cope during and after pregnancy
  • Support to honor cultural rituals, religious and spiritual beliefs
  • Creating a comfortable, serene, and peaceful environment, preserving dignity
  • Guidance to plan final arrangements, memorial services, and special goodbyes, according to family wishes
  • Bereavement counseling for parents and siblings
  • Ideas to create precious keepsakes prior to and after the baby’s birth
  • Gathering resources from specialty clinics, community services and financial assistance programs

Anyone - physician, family, or friend - can refer a family for our services.

To get in touch, call us at 716-686-8006 or fill out an online form.


Western New York Perinatal Bereavement Network

The Western New York Perinatal Bereavement Network (WNYPBN) is comprised of bereaved parents and healthcare professionals who promote standards of bereavement intervention through educational support, community programs and referral services to bereaved parents.

Your Perinatal Program Team

Our Perinatal Program provides comfort-focused medical care and social, emotional and spiritual support for patients and their families through a collaborative team that includes:

  • Palliative Care Physician
  • Pediatric Registered Nurse
  • Social Worker
  • Spiritual Care support
  • Expressive therapies (music, art and massage)
  • Bereavement services

Essential Care for Children

Our Essential Care for Children program provides comprehensive, home-based palliative care to medically complex children, infants to adolescents, and helps to minimize hospitals stays and emergency room visits.

Experience Amila's Story

Donate to Help Children and Families

Our Essential Care for Children and Perinatal Program are directly supported through community donations, grants and fundraising. No family is turned away as the needs are significant – your generosity can go a long way.